Diary of a Life with Chronic Pain v2.01

At its worst I disabled the entire site with the exception of the message board and chat rooms seeing as people have friends there and need those services to continue seeing them or to at least tell them email addys etc.

After a weekend of thought and umpteen "eh????" emails, I decided that rather than make the sites info unavailable when so many people do genuinely seem to find it useful I have instead stepped back from the ostomy community to focus instead on the pain site and gettin that grown and established which is a big job and will take a long time - we're talkin at leasta a year i should think, maybe even two.

Ive not been in the chat room since this decision. But I have been in the pain chat room instead most of this time health permitting. Anyone and everyone is welcome in the pain room regardless of if you think you are a pain-ee or not. Its the same server as the ostomyland chat room, so you can either use the java chat on the pain site page to access it, or if using the ostomy java or ostomy mirc you can just type /join #chronicpain and it will take you to us.

http://www.chronicpainsupport.info/

With the message board, I still read it as much as before but I only reply to messages that havent had answers, or make posts about important ostomy issues (such as the Pelican Letter issue that was raised this week) or to make important announcements about any of the sites.

Speaking of chat, the first weekly pain chat was last night. How did it do? I dont know. Im ashamed to say I wasnt there. I had a horrendous headache and so had to hide in a dark room all night. I am so upset to have missed the first chat. But thank you to leeann and kathy who both idled in there during the meet and welcomed the new chatters and old chatters alike. It seems like we had maybe 5 or 6 ppl thru the doors, which for a first meet was pretty good. The first ostomy meet has... one. :) So, its an encouraging start.

The new Xbox 360 games console arrived in the UK on Friday and thankfully I was one of the ones lucky enough to get one. Lucky or unlucky is a matter of opinion I guess. But im my eyes, im lucky lol. The stock is so short that unopened xbox 360s are fetching a grand on Ebay. They retail at £280 new! So thats a big mark up.

Im very impressed by the games graphics wuality and the gameplay of the actual games Ive been able to play. Ive only actually tried two of the six games I got with it though cos Ive just not been able to spend the time on the screen, im still limiting my time on it. However, I know it works so thats all that matters, I can keep dipping into it as and when it happens.

Not been able to take it online yet though. My Router is dead. *sobs*. So im on the net today via my trusty dial up modem Alcatel Speed touch USB. Old faithful. Nearly 5 years old and still going string, even with the cream paint splashes on it. :D

Belkin have said they are going to send me a freebie replacement power adaptor for it within 2 - 3 business days, so hopefully tomorrow morning it will arrive. Its the first time Ive had use the Belkin Lifetime warranty claim on any of their products, but I cannot fault their service so far - but I am glad that the phone call was free as I was sent from Italy to American and back to Italy all in one phone call. Or mayb eit was Spain instead of italy, I couldnt quite make out the accent!

Lucy has had a fur-cut today. Shes lookin like a skinned cat again now. hehehe. Bless her.

Healthwise, things are just the same here. Ive been gettin excessive headahces lately though so Im off for an eye test soon. Pain wise things are the same. Theres been some v. bad breakthru sessions this last couple of weeks, and indeed when the ostomy site blew up I was in the middle of a bad session pain wise then which had been going on for nearly 72 hours at that point, which is probably why i reacted the way I did. That said though I do not regret the decision to step down from the problem side of the ostomy site although i do miss talking to some folks as regularly as I did.

Fits: Ive had a couple of major body jerk sessions this last week or so which is why im limitimg my time online and on the xbox at the moment. I wonder if these headaches have anything to do with that? Who knows. I see the nerurologist in APRIL, so I might find out then. :/

Bowel wise: still bleeding sporadically. So not worried about that. Its aching but nothing else.

Dad is not so good at the moment, is v. tired cos we've been waiting hand and foot on mum who's been very ill and been ordered to bed by the doc for a week. She only got out of bed yesterday and I think she needs to go back, she looks so sick. Shes had a major do of gastric flu on top of a nasty sinus problem when they got inflamed from chemical burns casued by the neighbours painting their kitchen floor with industrial floor paint then buggering off for a week instead of leaving the doors and windows open as long as possible. And if they lived there of course it would have been ventilated every day but instead it got locked in the house and seeped thru into ours. The place stunk to high heaven and made even me feel light headed and im doped up to the nines anyways! Sheesh. lol.

Anyways shes back on the mend now thankfully. I dont like to see my folks ill. It reminds me that they are not immune to these things or invulnerable and that they really wont be here for ever. I realise that that is very melodramatic of me, but it is something I worry about a lot as I depend on them so much Id be utterly lost without them. Obviously though that is NOT the only reason I worry so. They mead a great deal to me, period.

Well I can smell the lunch cooking so I guess I had better get a move on.

Take care everyone. Buh bye now!

Jason.
Pain: 4/10 now (7/10 peak during last two weeks).
Depression: 5/10 now (7/10 peak during last two weeks)